PATIENTS FOR PATIENT SAFETY US

 Patients For Patient Safety US (PFPS US) is a patient-led 501(c)(3) nonprofit working  to eliminate preventable harm in American health care. Founded in 2021, PFPS US is the  U.S. branch of the World Health Organization's Patients for Patient Safety network and  works to put the WHO Global Patient Safety Action Plan 2021-2030 into practice in the  United States. Our members are patients and families who have experienced medical  harm, joined by clinicians, researchers, and partner organizations. We focus on  diagnostic safety, patient-reported measures, policy and advocacy, and the safe,  equitable use of artificial intelligence in health care.

Learn more about PFPS US

Welcome to our PRAISE Consortium
(Patient Revolution for AI to advance Safety and Equity)

PRAISE is a PFPS US consortium of patients, caregivers, and advocates working to make  sure artificial intelligence in health care is safe, effective, and shaped by patients. Patients for Patient Safety US convenes patients, caregivers, and advocates to explore how to optimize safe and effective patient use of artificial intelligence (AI) to achieve better outcomes by promoting:

  • Patient agency
  • Health system readiness
  • Culture change
  • Co-creation and governance
  • Safety, equity, and accountability
  • Research, measurement, and policy

MISSION

To unite patients, families, and stakeholders to improve diagnostic accuracy, advance patient safety, and eliminate health disparities through research, policy, advocacy, and technology.

VISION

A world in which no one is harmed in health care, and every patient receives safe and respectful care every time, everywhere.

What We Do

Advocacy and Policy

ADVOCACY and POLICY

Advocacy and policy in healthcare are closely interconnected concepts that together shape how healthcare organizations function, how care is delivered and paid for, what medicines or devices can be used to treat patients, how patient privacy is protected, and how health is maintained and continuously improved.


Through Project PIVOT, patients help decide which patient-reported experiences and

 outcomes should be used to measure safety and diagnostic accuracy, and we partner with

 AHRQ Diagnostic Centers of Excellence on diagnostic safety research.

See our public comments
Researchers reviewing patient safety data

RESEARCH AND MEASURES


We are committed to advancing research that centers patient and family experiences, particularly in areas where harm is most prevalent, such as diagnostic safety and the dismissal of patient concerns.

Learn about Project PIVOT
Clinician using artificial intelligence tools

ARTIFICIAL INTELLIGENCE


In the rapidly evolving field of health technology, we are at the forefront of  advancing responsible AI in health care. PFPS US President and CEO Sue Sheridan  co-chairs the National Academy of Medicine's Patient Safety in the Era of AI  initiative, and our PRAISE Consortium brings patient voices into how AI is designed and used.

Our work on AI

Together, these efforts reflect PFPS US’s integrated approach to achieving zero harm in healthcare, combining patient-driven advocacy, rigorous research and measures, policy leadership, and technological innovation to create a safer, more equitable system for all.

Did You Know...

Medical Errors
Medical Errors

Medical errors may be the third leading cause of death in the United States,   according to a 2016 study in The BMJ by Makary and Daniel.

Diagnostic Errors
Diagnostic Errors

About 795,000 Americans die or are permanently disabled each year because dangerous diseases are misdiagnosed (Newman-Toker et al., BMJ Quality & Safety, 2023).

Vulnerable Populations
Vulnerable Populations

Medical and diagnostic errors disproportionately harm socially marginalized populations.

Patients For Patient Safety US (PFPS US) is a patient-led 501(c)(3) nonprofit and the U.S. branch of the World Health Organization's Patients for Patient Safety network. It works to eliminate preventable harm in American health care.

Project PIVOT (Patients Involved in deVeloping Outcomes Together) is a PFPS US initiative in which patients help identify and prioritize the patient-reported experiences and outcomes used to measure patient safety, diagnostic accuracy, and equity.

PRAISE (Patient Revolution for AI to Advance Safety and Equity) is a PFPS US consortium of patients, caregivers, and advocates working to make AI in health care safe, effective, and shaped by patients.

The PSSM is a CMS measure in which hospitals attest to the structures and culture they have in place for patient safety. The PFPS US Guardians workgroup encourages every hospital to adopt it authentically.

Patients, families, and advocates can become PFPS US Champions; organizations can join as Strategic Partners, and anyone can donate at www.pfps.us/donate.