Alexis Snyder

Alexis Snyder is a Patient and Community Engagement Specialist. She advises threw consultation and workshops on best practices and strategies for authentic engagement to ensure that patient and family voice, as well as the voice of the greater community and the underserved is always present and well represented.

As a parent of a young adult with complex medical needs and rare disease, Snyder has a unique perspective on healthcare delivery and the systems of care available to patients with medical complexity.

She is a strong advocate, advisor and facilitator who lends her talents to several regional and national projects and organizations such as The Patient Centered Outcomes Research Institute (PCORI), CMS, the Agency for Health Research and Quality(AHRQ), the American Academy of Pediatrics (AAP), National Quality Forum (NQF), Academy Health, the Partnership for Quality Measurement (PQM), and the Health Information and Technology Advisory Committee of the Office of the National Coordinator (HITAC).

She is Co-Author and Co-Editor of, The Patient and Health Care System: Perspectives on High-Quality Care (Springer 2020). Additionally, she and her daughter work to spread awareness and understanding for invisible disabilities. Her blog, Invisible Disabilities, has received global recognition.